Mind of the Universe Genetic Privacy: Ethics, Implications

This module introduces the subject of genetic privacy, discussing different practices dedicated to the disclosure and application of genetic data. Students reflect on their initial stance towards these practices.

This module encourages critical reflection on different types of practices that work with genetic data, including the Personal Genome Project. It explores ethical questions raised by these practices and encourages students to think about what genetic privacy means to them personally.

This module enriches the ethical debate around genetic privacy by viewing the subject from the perspective of art and culture. It explores how artworks and cultural objects can foreground ambiguities, emotions, and cultural assumptions often neglected in mainstream debates around biotechnological developments.

This module identifies different stakeholders in the public debate around the disclosure and application of genetic data. It examines diverse arguments advocated by various groups and explores how these arguments are formed by emotions, gut feelings, and cultural values.

This final module focuses on completing and publishing the policy advice developed throughout the course. It includes a webinar recording on policy recommendations and provides information on other related learning experiences.